Today takes us to the 12th October
In the morning Darren says to me "Jalan's cough swab must be clear as we haven't heard from anyone" Usually if something is wrong they ring us on the Monday afternoon following cinic.
I said "We are not in the clear yet sometimes Monday is too hectic for them to ring"
Famous last words or mothers intuition
The phone rings and it is Peta our CF nurse letting us know that Jalan has cultured her first dose of Pseudomonas and is booked to come in on Thursday for a pic line to be inserted and IV drugs to be started.
She said i didnt ring Monday as i wanted to be sure we had a theatre and a bed
Needless to say we are a bit shattered about this call
Thursday we head to the hospital We have to be there by 10am and Jalan has to be nil by mouth
We book in and all Jalan wants is a drink so they give her a small sip of glucolyte
We are shown to our home (bed) for the next two weeks.
We unpack our gear and get set up
Soon the starlight guys come along with a guy with a guitar and he sings to Jalan
At 5 to one the anaesthitist then comes around to collect her and off we go downstairs to Theatre
I go in with her and hold her hand as they tell her what is happening and gives her a pink face mask smelling like strawberry ice cream She asks if she can keep the mask to use on her baby dolls as they all have Cystic Fibrosis as well and she needs it for their operations They say she can and slowly they turn up the gas and she goes limp and falls asleep
We go and wait in the parents waiting room for her
2 hours later I go to find out what is happening and they say she has just come out of theatre and is in recovery
About half an hour later we get called and she is lying there very docile and is happy to see us Usually we have to spend half and hour or so calming her down as she is usually screaming and carrying on
We stay in recovery for a while then we go of to her room and she is put in her bed once again
She sleeps a lot on and off and has a bit of a temperature
Darren heads home and i settle in to begin the admission
I give her one of her birthday presents early to try cheer her up a little. It is a Dora music set with tamborine maraccas drum cymbals and a flute She smiles and is happy for about 10 minutes then gives it all back to me to pack up and snuggles down for a sleep
Her dinner comes and she tries to eat a bit but we end up with it all coming back up again
She is not quite ready to eat and has a high temperature so they give her some panadol and keep a watch on her
She watches tv for a while and then slowly drifts off to sleep til morning
Luv Deb
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